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What is Lymphedema Awareness Day?     

 

 

Lymphedema awareness is lymphedema education.        

 

 

Lymphedema is recognized as one of the most feared side effects of cancer treatment and yet most people don’t know anything about it.  Lymphedema Awareness Day is a day of observance and proclamation, a day on which the entire lymphedema community can take action to raise awareness of this under-recognized condition and the people who live with it every day.

 

National Lymphedema Awareness Day is March 6 of every year and we have chosen this day as a day to draw attention to the problem of lymphedema, whether it is primary or secondary, cancer-related or not. How you choose to make your voice heard in your community is up to you.

 

If you have lymphedema, or work with lymphedema patients, this is a day for you to place an article or letter to the editor in your local paper, or contact your local television and radio stations ahead of time and ask for coverage in respect of this North American Lymphedema Awareness Day. If you have a blog, then write about it.  If you bump into friends and professional colleagues, talk about it. Many patients don’t like to talk about their lymphedema, but if you talk about it all day this one day of the year you can choose not to talk about it the rest of the year.

 

It is a good day for therapists to find ways to honour their patients and for patients to honour their therapists. You can pass out fliers, send greeting cards, arrange to speak to local doctors or nurses, or just take the extra few moments  the next time someone asks you about you the compression garment that you are wearing to really explain it to them.

 

You can launch a campaign to have your town, city, province or country to proclaim March 6 as Lymphedema Awareness Day.

 

There is a thorough and good quality introduction to lymphedema journal article titled, “Lymphedema: a primer on the identification and management of a chronic condition in oncologic treatment;” CA: A Cancer Journal for Clinicians. 2009;59:8.  The full-text version is available online for downloading, viewing and printing at no charge.  You can click the image, below, to open a copy – and please consider sharing a copy of it  with your family doctor, oncology specialists, and/or cancer care centre clinicians.

 

“Lymphedema: a primer on the identification and management of a chronic condition in oncologic treatment;” CA: A Cancer Journal for Clinicians. 2009;59:8.

 

Print and display an Awareness Poster at your clinic, workplace or doctor’s office. Create your own or download and use this one: 

 

 

Contact your provincial lymphedema association to join, donate or find out how you can get involved. If you don’t have a provincial association, consider forming one.   Below are some links to get you started – in particular, check out Lymphovenous Canada’s site for some sample documents to help you have your city proclaim March 6 Lymphedema Awareness Day officially:

 

 

ALA – Alberta Lymphedema Association LDL_Maple_Leaf.jpg

 

The Alberta Lymphedema Association (ALA) is a not for profit charitable organization founded in 2003 by a team of people who recognized the need to help people living with, or at risk of, Lymphedema. A learning association committed to ongoing education of its stakeholders, ALA works to make a difference and empower affected individuals and their families to help manage this condition. ALA works from the patient standpoint.

 

AQL/LAQ - Assn Québécoise du Lymphoedème/Lymphedema Assn of QuébecLDL_Maple_Leaf.jpg

 

The Lymphedema Association of Quebec is a charitable organization founded in 1999 to provide education, awareness, and support to those with lymphedema, and to encourage research leading to effective treatments and eventually a cure. (Text is available in English and French)

 

BCLA – BC Lymphedema Association LDL_Maple_Leaf.jpg

 

The BC Lymphedema Association (BCLA) has been created for the purpose of promoting a greater public understanding of Lymphedema. The BCLA is dedicated to providing information for patients and their families, caregivers, medical practitioners and the public. The BCLA provides encouragement and support to patients, educating and informing them of treatment options available to manage their condition. 

 

Canadian Lymphedema Framework LDL_Maple_Leaf.jpg

Canadian Lymphedema Framework eNews Subscription

 

The CLF is an academic and patient stakeholder collaboration which is part of an international initiative aiming to promote research, best practice guidelines and lymphedema clinical development, worldwide.  The mission of the Canadian Lymphedema Framework is to work to improve the management of lymphedema and related disorders in Canada.

 

LAO – Lymphedema Association of Ontario LDL_Maple_Leaf.jpg

 

The Lymphovenous Association of Ontario was founded by a small group of lymphedema patients and their families in 1996.  Originally intended as a support group for patients, it has grown to provide core programs and services to lymphedema patients, those at risk for lymphedema, lymphedema treatment professionals and other health care providers.

 

Lymphovenous Canada  LDL_Maple_Leaf.jpg

 

For people living with lymphedema in Canada. This site provides information on lymphedema and cancer treatment in Canada and its provinces.

 

LAM - Lymphedema Association of Manitoba  LDL_Maple_Leaf.jpg

 

 

The Lymphedema Association of Manitoba is a newly formed organization whose mission is the pursuit of resources, information, education, awareness and support to those affected with or at risk of primary or secondary lymphedema; their families, health care professionals and the general public.

 

LAS – Lymphedema Association of Saskatchewan  LDL_Maple_Leaf.jpg

 

 

The Lymphedema Association of Saskatchewan is a non- profit organization founded in 2004 by a group of people who recognised the need to help those who have or are at risk of developing lymphedema and related lymphatic disorders. We strive to be a learning association, committed to ongoing education. SLLA works to empower affected individuals and their families to successfully manage these conditions.

 

 

McGill Lymphedema Research Project LDL_Maple_Leaf.jpg

 

A Canadian, university-based research project under the guidance of Dr. Anna Towers involving Dr. Vodder school-certified therapists.

 

 

 

 

 

 

 

 

 

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