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Abreast & The Rest – Women’s
Breast Gynecologic Cancer Newsletter 
A
quarterly newsletter produced by the BC / Yukon Women's Cancer Alliance to
provide current and accurate information. Works collectively with their
partners to ensure resources & services are accessible to those living
with breast and gynecological cancers, their families, and supporters.
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ACLN – Atlantic Clinical Lymphedema
Network 
The
Atlantic Clinical Lymphedema Network (ACLN) is an inter-provincial network of
skilled clinicians from the four Atlantic provinces who are committed to
the exploration and implementation of best practice and effective service
delivery in education and management of lymphedema and related conditions. A
truly inter-professional network, the members are Physiotherapists, Occupational
Therapists, Nurses and Massage Therapists who educate and treat people who
suffer from chronic swelling conditions.
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ALA – Alberta Lymphedema Association
The
Alberta Lymphedema Association (ALA) is a not for profit charitable
organization founded in 2003 by a team of people who recognized the need to
help people living with, or at risk of, Lymphedema. A learning association
committed to ongoing education of its stakeholders, ALA works to make a
difference and empower affected individuals and their families to help
manage this condition. ALA works from the patient standpoint.
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AQL/LAQ - Assn Québécoise du
Lymphoedème/Lymphedema Assn of Québec
The
Lymphedema Association of Quebec is a charitable organization founded in
1999 to provide education, awareness, and support to those with lymphedema,
and to encourage research leading to effective treatments and eventually a
cure. (Text is available in English and French)
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BCLA – BC Lymphedema Association
The
BC Lymphedema Association (BCLA) has been created for the purpose of
promoting a greater public understanding of Lymphedema. The BCLA is
dedicated to providing information for patients and their families,
caregivers, medical practitioners and the public. The BCLA provides
encouragement and support to patients, educating and informing them of treatment
options available to manage their condition.
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BreastCancer.Org
BreastCancer.Org – Discussion
Boards/Forum
Breastcancer.org is a non-profit
organization dedicated to providing the most reliable, complete, and
up-to-date information about breast cancer. Their mission is to help women
and their loved ones make sense of the complex medical and personal
information about breast cancer, so they can make the best decisions for
their lives. Very active discussion board community.
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Canadian Lymphedema Framework
The
CLF is an academic and patient stakeholder collaboration which is part of
an international initiative aiming to promote research, best practice
guidelines and lymphedema clinical development, worldwide. The mission of
the Canadian Lymphedema Framework is to work to improve the management of
lymphedema and related disorders in Canada.
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CancerConnection.ca – Lymphedema
Support Group Online
A
place for all, but specifically for Canadians living with or at risk for
lymphedema to gather, share experiences and information and support one
another. CancerConnections.ca also offers great resources and forums in
both English and French in support of all Canadians fighting cancer.
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Caring Voices
Caring
Voices is an online community for cancer survivors. Use this site to access
current resources, learn about upcoming survivorship events, take part in
chats and discussions and meet other survivors.
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CAET – Canadian Association for
Enterostomal Therapy
The
CAET acts in the public interest for Canadian Enterostomal Therapy Nurses
to give national leadership in wound, ostomy and continence nursing
promoting high standards for ET nursing practice, education, research and
administration to achieve quality specialized nursing care.
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CAWC – Canadian Association of Wound
Care
A
non-profit organisation of healthcare professionals, researchers, corporate
supporters, patients and caregivers dedicated to the advancement of wound
care in Canada.
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CBCN Canadian Breast Cancer Network
The
Canadian Breast Cancer Network (CBCN) is a survivor-directed, national
network of organizations
and individuals. CBCN is a national link between all groups and individuals
concerned about breast cancer, and represents the concerns of all Canadians
affected by breast cancer and those at risk.
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Canadian Breast Cancer Support Fund
Breast
cancer is not only a health challenge; it is often an economic crisis. The
Canadian Breast Cancer Support Fund is dedicated to providing financial
support to breast cancer patients
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CORD Canadian Organization for Rare
Disorders
CORD
is Canada's national network for organizations representing all those with
rare disorders. CORD provides a strong common voice to advocate for health
policy and a healthcare system that works for those with rare disorders.
CORD works with governments, researchers, clinicians and industry to
promote research, diagnosis, treatment and services for all rare disorders
in Canada.
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Dercum’s Disease (Adiposis Dolorosa)
Support Group
An
online community of patients, family members and friends dedicated to
dealing with Dercum's Disease, together. Dercum disease - also known as
Adiposis Dolorosa, Anders' syndrome and Dercum-Vitaut syndrome - is a rare
condition that is characterized by multiple, painful fatty lipomas (benign,
fatty tumors). Learn more about Dercum’s: click here and click here and click here
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FDRS – Fat Disorders Research
Society
The
Fat Disorders Research Society, Inc. exists to raise funds to promote
research, increase public awareness, and provide information and resources
for individuals with fat disorders and/or their caregivers. Dercum’s
Disease (Adiposis Dolorosa), Madelung’s Disease, Lipedema and Familial
Multiple Lipomatosis or Angiolipomatosis are names of some of these fat
disorders.
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Global Alliance to Eliminate
Lymphatic Filariasis
The
mission of the Global Alliance to Eliminate Lymphatic Filariasis is to
bring together a diverse group of public-private health partners to support
the Global Programme to Eliminate Lymphatic Filariasis by mobilising
political, financial and technical resources to ensure success.
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Inspire Health
Located
in Vancouver, InspireHealth is an integrated cancer care centre, leading
the way through research and innovative cancer care programs integrated
with conventional cancer treatment.
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International Society of Lymphology
(ISL)
Advance
and disseminate knowledge in the field of lymphology and allied topics
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Klippel Trenaunay Support Group
This
group welcomes patients and their families as members and provide
information about the group and about Klippel-Trenaunay Syndrome. We
provide families, adults with K-T, and professionals with links to
information and opportunities to learn from each other.
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Lymphatic Research Foundation
The
Lymphatic Research Foundation is a not-for profit organization whose mission
is to advance research of the lymphatic system and to find the cause of and
cure for lymphatic diseases, lymphedema, and related disorders.
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LANA – Lymphology Association of
North America
The
Lymphology Association of North America. Search for LANA certified
therapists in your area.
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LAM – Lymphedema Association of
Manitoba
The
Lymphedema Association of Manitoba is a newly formed organization whose
mission is the pursuit of resources, information, education, awareness and
support to those affected with or at risk of primary or secondary lymphedema;
their families, health care professionals and the general public.
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LAO – Lymphedema Association of
Ontario
The
Lymphedema Association of Ontario was founded by a small group of
lymphedema patients and their families in 1996. Originally intended
as a support group for patients, it has grown to provide core programs and
services to lymphedema patients, those at risk for lymphedema, lymphedema
treatment professionals and other health care providers.
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LAS – Lymphedema Association of
Saskatchewan
The Lymphedema Association of Saskatchewan
(LAS) is a non- profit organization founded in 2004 by a group of people
who recognised the need to help those who have or are at risk of developing
lymphedema and related lymphatic disorders. We strive to be a learning
association, committed to ongoing education. SLLA works to empower affected
individuals and their families to successfully manage these conditions.
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Laughing Lymphercise
Website
of Rosemary Kelly, LY, LLT/T – a Laughter Yoga leader and a Certified
Laughing Lymphercise instructor and trainer based in the Kitchener-Waterloo
area of Ontario.
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Leukemia & Lymphoma Society of
Canada 
The
Leukemia & Lymphoma Society® (LLS) is the world's largest voluntary
health agency dedicated to blood cancer. The LLS mission: Cure leukemia,
lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of
patients and their families. LLS funds lifesaving blood cancer research
around the world and provides free information and support services.
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Lipedema, Dercum’s, Madelung’s – Dr.
Karen L. Herbst, PhD, MD
A
very informative website by Dr. Karen Herbst, a San Diego endocrinologist
studying and specializing in fat disorders. Be sure to take a moment to
watch the breathing videos. Site has an excellent set of links to further
information, including the Tilly Smidt lipedema site, HERE.
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Lymph Notes
Lymphnotes
is an excellent source of information and support for people living with lymphedema.
This site also provides a forum to communicate with others living with
lymphedema.
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Lymphovenous Canada
For
people living with lymphedema in Canada. This site is a great source of information
on lymphedema and cancer treatment in Canada and its provinces, as well as
related news and information from around the world.
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Lymphedema People
An
informative website for people with lymphedema, made by people with
lymphedema.
This
site also has a forum to communicate with other people living with
lymphedema.
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Male Breast Cancer.ca
This
website site is designed to provide Male Breast Cancer (MBC) patients,
survivors and their loved ones with access to information on male breast
cancer, to provide a forum to share individual stories, and to provide one
on one support from other male breast cancer survivors.
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McGill Lymphedema Research Project
A
Canadian, university-based research project under the guidance of Dr. Anna
Towers involving Dr. Vodder school-certified therapists.
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Melanoma Network of Canada
A
national, patient-led organization whose mission is to provide melanoma
patients and their caregivers with current and accurate information and
services in the fight against melanoma. Through the MNC network they
provide funding for awareness, education, advocacy and research.
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NLA
– National Lipedema Association
(United States)
A
voluntary, rare disease organization founded in 2004. Lipedema involves an
excessive accumulation of subcutaneous fat, primarily from the waist to a
distinct line just above the ankles, although it can also involve the arms
and abdomen. The disease can be inherited and affects women almost
exclusively. The fat presents in a typical pattern that is bilateral and
symmetrical. The disease often is confused with obesity, but lipedemic fat
generally is not mobilized by diet and exercise, and lipedema can appear in
women of all sizes, including women who are anorexic. Although it can be
diagnosed as early as age two, it usually presents first at puberty and
often becomes worse during pregnancy and at menopause. Lipedema can be a
factor in causing secondary lymphedema, an accumulation of lymphatic fluid
that causes swelling, usually in the arms and/or legs. The NLA's mission is
to educate medical providers and patients about lipedema, and to promote
research that benefits lipedema patients. NLA offers patient and professional
education, patient advocacy, and networking.
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NLN
- National Lymphedema Network (United
States)
An
internationally recognized, non-profit organization founded in 1988 to
provide education and guidance to lymphedema patients, health care
professionals and the general public by disseminating information on the
prevention and management of primary and secondary lymphedema.
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NALEA – North American Lymphedema
Education Association
The
North American Lymphedema Education Association (NALEA) is specifically
organized around training standards for lymphedema therapists. NALEA member
schools share the unified goal of setting and maintaining the highest
standards of lymphedema education in North America.
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NEFCA – Nurses Entrepreneurial
Footcare Association of Canada
The purpose of this website is
to provide a framework of practical and moral support for qualified
entrepreneurial foot care nurses who continue to lobby for change within
the health care system.
You can use the Find a Foot Nurse link to search for a nurse by
city. You can also read about foot
anatomy
and different types of foot problems by exploring the links on the
side navigation panel.
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Ovarian Cancer Canada
Ovarian
Cancer Canada is a registered Canadian charitable organization whose
mission is to overcome ovarian cancer, providing leadership by: (1)
Supporting women living with the disease and their families; (2) Raising
awareness in the general public and with health care professionals; (3)
Funding research to develop early detection techniques, improved treatment
and, ultimately, a cure
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Sharing Strength
A
Canadian online resource and community for women with breast cancer. Site
features information to help visitors find trusted organizations, quality
resources and peer support.
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Step-Up, Speak Out (SU-SO)
The StepUp-SpeakOut.Org website
grew out of the "Lymphedema after Surgery"
discussion board at breastcancer.org. It is
their mission to insure that all women and men undergoing breast cancer
surgery are fully informed about the risks of lymphedema, the warning signs
of lymphedema, and the appropriate risk reduction practices that
should be taken to possibly prevent lymphedema, and to have it properly
diagnosed and treated it in its early, reversible stages. And
that no breast cancer survivor has a "missed diagnosis" or lack
of information of risk reductions, and
has their lymphedema turn into Stage 2 or 3.
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Turner Syndrome Society of Canada
A
non-profit charitable organization was founded in 1981 by an individual
with TS who wanted to share experiences and information. It provides
support services for individuals with TS and their families and disseminates
up-to-date medical information to families, physicians and the general
public.
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Vascular Disease Foundation (United
States)
Established
in 1998 the Vascular Disease Foundation (VDF) is the only multidisciplinary
national public 501(c)(3) non-profit organization focused on vascular
diseases with the sole purpose of providing public education and improving
awareness about vascular diseases. The mission of the VDF is:
To
improve health for all by reducing death and disability from vascular
disease.
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Wellspring
Wellspring
is a network of community-based cancer support centres that provide
support, education and coping skills, at no charge, to individuals and
families
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WAWLC – World Alliance for Wound and Lymphedema Care
The
mission of WAWLC is to work in partnership with communities worldwide to
advance sustainable prevention and care of wounds and lymphoedema in
settings with limited resources.
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UNDERSTANDING LYMPHEDEMA
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The Lymphatic System
A
short, readable primer on the function and disorders of the lymphatic
system.
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Lymphedema: What Every Woman with
Breast Cancer Should Know
Written
specifically for women who have been treated for breast cancer.
Explains
lymphedema, how to lower your risk of developing lymphedema and
treatment.
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Understanding Lymphedema (For
Cancers Other Than Breast Cancer)
An
overview of lymphedema that explains what the lymph system is, symptoms and
prevention of lymphedema.
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CANADIAN THERAPIST TRAINING AND DIRECTORIES
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Dr. Vodder School International
Click here to open a therapist
directory.
“We
provide the highest standard of training with empathic and knowledgeable
instructors, trained to teach the refined hands-on techniques that achieve
great results.”
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Integrated Lymph Drainage / Toronto Lymphocare
Click here to open a therapist
directory.
“Integrated
Lymph Drainage (ILD) is a precise technique designed to accelerate the
normal functioning of the lymph vessel system. It is a gentle, rhythmic,
hands-on technique that will enable the therapist to work holistically and
to achieve surprising results with their clients.”
Klose Training & Consulting –
Lymphedema Therapy Certification Courses
Click here to open a therapist
directory.
“The
highest quality Lymphedema Certification and Continuing Education courses
in the U.S. and abroad. Long-standing CE provider for physical,
occupational and massage therapists.”
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Check
your Provincial Lymphedema Association and Lymphovenous Canada websites for
additional lists of Canadian lymphedema therapists and hospital based
treatment programs. Links above.
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Mailing address:
12-111 Fourth Ave., Suite 347
St. Catharines, ON L2S 3P5
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Send us an email:
Info@LymphedemaDepot.com
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Give us a call:
(905) 687-8500
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Send us a fax:
(905) 687-8224
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©2013
Lymphedema Depot Ltd.
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