Abreast & The Rest – Women’s Breast Gynecologic
A quarterly newsletter produced by the BC /
Yukon Women's Cancer Alliance to provide current and accurate information. Works
collectively with their partners to ensure resources & services are
accessible to those living with breast and gynecological cancers, their
families, and supporters.
ACLN – Atlantic Clinical Lymphedema
The Atlantic Clinical Lymphedema Network
(ACLN) is an inter-provincial network of skilled clinicians from the four
Atlantic provinces who are committed to the exploration and implementation
of best practice and effective service delivery in education and management
of lymphedema and related conditions. A truly inter-professional
network, the members are Physiotherapists, Occupational Therapists, Nurses
and Massage Therapists who educate and treat people who suffer from chronic
ALA – Alberta Lymphedema Association
The Alberta Lymphedema Association (ALA) is a
not for profit charitable organization founded in 2003 by a team of people
who recognized the need to help people living with, or at risk of,
Lymphedema. A learning association committed to ongoing education of its
stakeholders, ALA works to make a difference and empower affected
individuals and their families to help manage this condition. ALA works
from the patient standpoint.
AQL/LAQ - Assn Québécoise du Lymphoedème/Lymphedema
Assn of Québec
The Lymphedema Association of Quebec is a
charitable organization founded in 1999 to provide education, awareness,
and support to those with lymphedema, and to encourage research leading to
effective treatments and eventually a cure. (Text is available in English
BCLA – BC Lymphedema Association
The BC Lymphedema Association (BCLA) has been
created for the purpose of promoting a greater public understanding of
Lymphedema. The BCLA is dedicated to providing information for patients and
their families, caregivers, medical practitioners and the public. The BCLA
provides encouragement and support to patients, educating and informing
them of treatment options available to manage their condition.
BreastCancer.Org – Discussion Boards/Forum
is a non-profit organization dedicated to providing the most reliable,
complete, and up-to-date information about breast cancer. Their mission is
to help women and their loved ones make sense of the complex medical and
personal information about breast cancer, so they can make the best
decisions for their lives. Very active discussion board community.
Canadian Lymphedema Framework
The CLF is an academic and patient stakeholder
collaboration which is part of an international initiative aiming to
promote research, best practice guidelines and lymphedema clinical
development, worldwide. The mission of the Canadian Lymphedema Framework
is to work to improve the management of lymphedema and related disorders in
CancerConnection.ca – Lymphedema Support Group Online
A place for all, but specifically for
Canadians living with or at risk for lymphedema to gather, share experiences
and information and support one another. CancerConnections.ca also offers
great resources and forums in both English and French in support of all
Canadians fighting cancer.
Caring Voices is an online community for
cancer survivors. Use this site to access current resources, learn about
upcoming survivorship events, take part in chats and discussions and meet
CAET – Canadian Association for Enterostomal Therapy
The CAET acts in the public interest for
Canadian Enterostomal Therapy Nurses to give national leadership in wound,
ostomy and continence nursing promoting high standards for ET nursing
practice, education, research and administration to achieve quality
specialized nursing care.
CAWC – Canadian Association of Wound
A non-profit organisation of healthcare
professionals, researchers, corporate supporters, patients and caregivers
dedicated to the advancement of wound care in Canada.
CBCN Canadian Breast Cancer Network
The Canadian Breast Cancer Network (CBCN) is a
survivor-directed, national network of organizations
and individuals. CBCN is a national link between all groups and individuals
concerned about breast cancer, and represents the concerns of all Canadians
affected by breast cancer and those at risk.
Canadian Breast Cancer Support Fund
Breast cancer is not only a health challenge;
it is often an economic crisis. The Canadian Breast Cancer Support Fund is
dedicated to providing financial support to breast cancer patients
CORD Canadian Organization for Rare
CORD is Canada's national network for
organizations representing all those with rare disorders. CORD provides a
strong common voice to advocate for health policy and a healthcare system
that works for those with rare disorders. CORD works with governments,
researchers, clinicians and industry to promote research, diagnosis,
treatment and services for all rare disorders in Canada.
Dercum’s Disease (Adiposis Dolorosa) Support Group
An online community of patients, family
members and friends dedicated to dealing with Dercum's Disease, together. Dercum
disease - also known as Adiposis Dolorosa, Anders' syndrome and
Dercum-Vitaut syndrome - is a rare condition that is characterized by multiple,
painful fatty lipomas (benign, fatty tumors). Learn more about Dercum’s: click here
here and click here
FDRS – Fat Disorders Research
The Fat Disorders Research Society, Inc.
exists to raise funds to promote research, increase public awareness, and
provide information and resources for individuals with fat disorders and/or
their caregivers. Dercum’s Disease (Adiposis Dolorosa), Madelung’s
Disease, Lipedema and Familial Multiple Lipomatosis or Angiolipomatosis are
names of some of these fat disorders.
Global Alliance to Eliminate
The mission of the Global Alliance to
Eliminate Lymphatic Filariasis is to bring together a diverse group of
public-private health partners to support the Global Programme to Eliminate
Lymphatic Filariasis by mobilising political, financial and technical
resources to ensure success.
Located in Vancouver, InspireHealth is an integrated
cancer care centre, leading the way through research and innovative cancer
care programs integrated with conventional cancer treatment.
International Society of Lymphology (ISL)
Advance and disseminate knowledge in the field
of lymphology and allied topics
Klippel Trenaunay Support Group
This group welcomes patients and their
families as members and provide information about the group and about
Klippel-Trenaunay Syndrome. We provide families, adults with K-T, and
professionals with links to information and opportunities to learn from
Lymphatic Education & Research Network
(LE&RN) – Canada Chapter
The Lymphatic Research and Education Network,
founded originally in the U.S. in 1998, dedicates its resources to the
advancement of lymphedema-related education, research and patient advocacy.
In recent years, LE&RN has developed a strong media presence with the
partnership and support of celebrity spokesperson, academy award-winning
actress, Ms. Kathy Bates; and has also made great progress in
the U.S. in securing ongoing Congressional support for the ‘Lymphedema
Treatment Act,’ introduced to the U.S. congress in January 2014, and in
securing the support of the NIH (National Institute of Health) for
lymphedema research. In May of 2016 the Canada Chapter was established,
adding a uniquely Canadian perspective and joining the mission to fight
lymphatic disease and lymphedema through education, research and advocacy.
LANA – Lymphology Association of
The Lymphology Association of North America.
Search for LANA certified therapists in your area.
LANL – Lymphedema Association of Newfoundland
The Lymphedema Association of Newfoundland and
Labrador (LANL) became a reality in December, 2014. LANL was the vision of
a dedicated group of medical professionals involved with lymphedema
patients along with lymphedema patients and their advocates. This group has
been supporting the lymphedema community for years on a volunteer basis,
without a formal base and using their connections and resources to make the
group a success. With provincial incorporation completed, LANL has made
its application for status as a registered charity.
LAM – Lymphedema Association of
The mission of the Lymphedema Association of Manitoba
is the pursuit of resources, information, education, awareness and support
to those affected with or at risk of primary or secondary lymphedema; their
families, health care professionals and the general public.
LAO – Lymphedema Association of
The Lymphedema Association of Ontario was
founded by a small group of lymphedema patients and their families in
1996. Originally intended as a support group for patients, it has
grown to provide core programs and services to lymphedema patients, those
at risk for lymphedema, lymphedema treatment professionals and other health
LAS – Lymphedema Association of
Association of Saskatchewan (LAS) is a non- profit organization founded in
2004 by a group of people who recognised the need to help those who have or
are at risk of developing lymphedema and related lymphatic disorders. We
strive to be a learning association, committed to ongoing education. SLLA
works to empower affected individuals and their families to successfully
manage these conditions.
Website of Rosemary Kelly, LY, LLT/T – a Laughter
Yoga leader and a Certified Laughing Lymphercise instructor and trainer
based in the Kitchener-Waterloo area of Ontario.
Leukemia & Lymphoma Society of Canada
The Leukemia & Lymphoma Society® (LLS) is
the world's largest voluntary health agency dedicated to blood cancer. The
LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and
improve the quality of life of patients and their families. LLS funds
lifesaving blood cancer research around the world and provides free
information and support services.
Lipedema, Dercum’s, Madelung’s –
Dr. Karen L. Herbst, PhD, MD
A very informative website by Dr. Karen
Herbst, a San Diego endocrinologist studying and specializing in fat
disorders. Be sure to take a moment to watch the breathing videos. Site
has an excellent set of links to further information, including the Tilly
Smidt lipedema site, HERE.
Lymphnotes is an excellent source of
information and support for people living with lymphedema. This site also
provides a forum to communicate with others living with lymphedema.
For people living with lymphedema in Canada.
This site is a great source of information on lymphedema and cancer
treatment in Canada and its provinces, as well as related news and
information from around the world.
An informative website for people with
lymphedema, made by people with lymphedema.
This site also has a forum to communicate with
other people living with lymphedema.
Male Breast Cancer.ca
This website site is designed to provide Male
Breast Cancer (MBC) patients, survivors and their loved ones with access to
information on male breast cancer, to provide a forum to share individual
stories, and to provide one on one support from other male breast cancer
McGill Lymphedema Research Project
A Canadian, university-based research project
under the guidance of Dr. Anna Towers involving Dr. Vodder school-certified
Melanoma Network of Canada
A national, patient-led organization whose
mission is to provide melanoma patients and their caregivers with current
and accurate information and services in the fight against melanoma.
Through the MNC network they provide funding for awareness, education,
advocacy and research.
NLA – National Lipedema Association (United States)
A voluntary, rare disease organization founded
in 2004. Lipedema involves an excessive accumulation of subcutaneous fat,
primarily from the waist to a distinct line just above the ankles, although
it can also involve the arms and abdomen. The disease can be inherited and
affects women almost exclusively. The fat presents in a typical pattern
that is bilateral and symmetrical. The disease often is confused with
obesity, but lipedemic fat generally is not mobilized by diet and exercise,
and lipedema can appear in women of all sizes, including women who are
anorexic. Although it can be diagnosed as early as age two, it usually
presents first at puberty and often becomes worse during pregnancy and at
menopause. Lipedema can be a factor in causing secondary lymphedema, an
accumulation of lymphatic fluid that causes swelling, usually in the arms
and/or legs. The NLA's mission is to educate medical providers and patients
about lipedema, and to promote research that benefits lipedema patients.
NLA offers patient and professional education, patient advocacy, and
NLN - National Lymphedema Network (United States)
An internationally recognized, non-profit
organization founded in 1988 to provide education and guidance to
lymphedema patients, health care professionals and the general public by
disseminating information on the prevention and management of primary and
NALEA – North American Lymphedema
The North American Lymphedema Education
Association (NALEA) is specifically organized around training standards for
lymphedema therapists. NALEA member schools share the unified goal of
setting and maintaining the highest standards of lymphedema education in
NEFCA – Nurses Entrepreneurial
Footcare Association of Canada
purpose of this website is to provide a framework of practical and moral
support for qualified entrepreneurial foot care nurses who continue to
lobby for change within the health care system.
use the Find
a Foot Nurse link to search for a nurse by
city. You can also read about foot
anatomy and different types of foot problems by
exploring the links on the side navigation panel.
Ovarian Cancer Canada
Ovarian Cancer Canada is a registered Canadian
charitable organization whose mission is to overcome ovarian cancer,
providing leadership by: (1) Supporting women living with the disease and
their families; (2) Raising awareness in the general public and with health
care professionals; (3) Funding research to develop early detection
techniques, improved treatment and, ultimately, a cure
A Canadian online resource and community for
women with breast cancer. Site features information to help visitors find
trusted organizations, quality resources and peer support.
Step-Up, Speak Out (SU-SO)
StepUp-SpeakOut.Org website grew out of the "Lymphedema after Surgery"
discussion board at breastcancer.org. It is their mission to
insure that all women and men undergoing breast cancer surgery are fully
informed about the risks of lymphedema, the warning signs of lymphedema,
and the appropriate risk reduction practices
that should be taken to possibly prevent lymphedema, and to have it
properly diagnosed and treated it in its early,
reversible stages. And that no breast cancer survivor has a
"missed diagnosis" or lack of information of risk reductions, and has
their lymphedema turn into Stage 2 or 3.
Turner Syndrome Society of Canada
A non-profit charitable organization was
founded in 1981 by an individual with TS who wanted to share experiences
and information. It provides support services for individuals with TS and
their families and disseminates up-to-date medical information to families,
physicians and the general public.
Vascular Disease Foundation (United
Established in 1998 the Vascular Disease
Foundation (VDF) is the only multidisciplinary national public 501(c)(3)
non-profit organization focused on vascular diseases with the sole purpose
of providing public education and improving awareness about vascular
diseases. The mission of the VDF is:
To improve health for all by reducing death
and disability from vascular disease.
Wellspring is a network of community-based
cancer support centres that provide support, education and coping skills,
at no charge, to individuals and families
WAWLC – World Alliance for Wound and Lymphedema Care
The mission of WAWLC is to work in partnership
with communities worldwide to advance sustainable prevention and
care of wounds and lymphoedema in settings with limited resources.
The Lymphatic System
A short, readable primer on the function and
disorders of the lymphatic system.
Lymphedema: What Every Woman with
Breast Cancer Should Know
Written specifically for women who have been
treated for breast cancer.
Explains lymphedema, how to lower
your risk of developing lymphedema and treatment.
Understanding Lymphedema (For
Cancers Other Than Breast Cancer)
An overview of lymphedema that explains what
the lymph system is, symptoms and prevention of lymphedema.
CANADIAN THERAPIST TRAINING AND DIRECTORIES
Dr. Vodder School International
Click here to open a therapist directory.
“We provide the highest standard of training
with empathic and knowledgeable instructors, trained to teach the refined
hands-on techniques that achieve great results.”
Integrated Lymph Drainage /
Click here to open a therapist directory.
“Integrated Lymph Drainage (ILD) is a precise
technique designed to accelerate the normal functioning of the lymph vessel
system. It is a gentle, rhythmic, hands-on technique that will enable the
therapist to work holistically and to achieve surprising results with their
Klose Training & Consulting – Lymphedema Therapy
Click here to open a therapist directory.
“The highest quality Lymphedema Certification
and Continuing Education courses in the U.S. and abroad.
Long-standing CE provider for physical, occupational and massage
Check your Provincial Lymphedema
Association and Lymphovenous Canada websites for additional lists of
Canadian lymphedema therapists and hospital based treatment programs. Links
12-111 Fourth Ave., Suite 347
St. Catharines, ON L2S 3P5
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Lymphedema Depot Ltd.